Listed below are various resources that offer more information on dementia, patient care, and brain health.
For Patients and Caregivers
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Caring for Alzheimer’s
No two people experience Alzheimer’s disease in the same way. As a result, there’s no one approach to care-giving. Your responsibilities can range from making financial decisions, managing changes in behavior, to helping a loved one get dressed in the morning. The Alzheimer’s Association offers several resources for taking care of a family member with Alzheimer’s including daily care, behavior, and coping.
Local Support Groups
If someone you know and care about is suffering from Alzheimer’s disease or a related dementia, support groups are available to provide caregivers with an opportunity to share their experiences and receive support from others coping with Alzheimer’s disease. Support groups meet monthly and there is no cost to attend.
Learning Together is a program for individuals experiencing early symptoms of Alzheimer’s disease (or a related dementia), and their care partners. It is a six-week program held in Indianapolis and Fort Wayne which provides education, support, and socialization among peers who face similar circumstances, in a tolerant and accepting atmosphere.
The Helpline is a telephone support service that provides information, emotional support, and referrals to persons with Alzheimer’s disease or related dementias and their caregivers, family members, and friends. It also serves health care professionals, paraprofessionals, and students. The Helpline is available 24 hours a day, 7 days a week.
Dementia and Alzheimer’s Care
Caring for a person with Alzheimer’s disease at home is a challenging task that can become overwhelming at times. Each day brings new demands and opportunities as the caregiver copes with changing levels of ability and new patterns of behavior. HELPGUIDE offers many resources on setting up home care, promoting a safe environment, establishing a routine, and engaging in activities with the patient.
Indiana Alzheimer’s Care provides a comprehensive and user friendly resource for Indiana Alzheimer’s Care services, Alzheimer’s Care communities, and Alzheimer’s Care facilities. This website offers information about local retirement communities including services provided, contact information, and pictures of the facility.
Family Caregiver Alliance (Caregiver’s Guide to Understanding Dementia Patients)
Caring for a loved one with dementia poses many challenges for families and caregivers. People with dementia from conditions such as Alzheimer’s and related diseases have a progressive brain disorder that makes it more and more difficult for them to remember things, think clearly, communicate with others, or take care of themselves. This Fact Sheet provides some practical strategies for dealing with the troubling behavior problems and communication difficulties often encountered when caring for a person with dementia such as wandering, agitation, repetitive speech, paranoia, incontinence, sleeplessness, eating, and bathing.
National Family Caregivers Association
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers’ lives by removing barriers to health and well being.
Administration on Aging
In order to serve a growing senior population, AoA envisions ensuring the continuation of a vibrant aging services network at State, Territory, local and Tribal levels through funding of lower-cost, non-medical services and supports that provide the means by which many more seniors can maintain their independence. The mission of AoA is to develop a comprehensive, coordinated and cost-effective system of home and community-based services that helps elderly individuals maintain their health and independence in their homes and communities.
Families are the backbone of our nation’s caregiver system. Everyone who participates in family life may become a caregiver. This site includes a broad-range of information to assist family caregivers in this journey of love and commitment including links for packets, brochures, and other materials that can be downloaded for free.
National Institute of Neurological Disorders and Stroke
The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world. The NINDS provides information on dementia research in their segment “Dementia: Hope in Research” This section includes what is currently being done in dementia research and how patients with dementia and their caregivers can contribute.
Cure Alzheimer’s Fund
The Cure Alzheimer’s Fund supports research with the highest probability of slowing, stopping or reversing Alzheimer’s disease.
American Geriatrics Society
The American Geriatrics Society (AGS) is a not-for-profit organization of over 6,400 health professionals devoted to improving the health, independence and quality of life of all older people. The Society provides leadership to healthcare professionals, policy makers and the public by implementing and advocating for programs in patient care, research, professional and public education, and public policy.
ClinicalTrials.gov offers up-to-date information for locating federally and privately supported clinical trials for a wide range of diseases and conditions. A clinical trial (also clinical research) is a research study in human volunteers to answer specific health questions. Interventional trials determine whether experimental treatments or new ways of using known therapies are safe and effective under controlled environments. Observational trials address health issues in large groups of people or populations in natural settings.
United Hospital Fund: Family Caregeiver’s Guide to Hospice and Palliative Care
United Hospital Fund’s Next Step in Care has published a Family Caregiver’s Guide to Hospice and Palliative Care. This guide answers a number of important questions when making the decision to transition to hospice or palliative care. It also provides a nice side-by-side comparison of Hospice vs. Palliative care. It is available in English, Spanish, Chinese and Russian.
Brain Performance & Psychology Center
We provide neuropsychological, psychoeducational and psychological assessments and treatments for child through geriatric populations. We also provide Independent Medical Examination (IME), Fitness for Duty and Public Safety Evaluations and consultations.
Community Home Health Services
Community Home Health Services, a part of the Community Health Network, offers personalized home health services, such as home care, hospice, home infusion, respiratory and home medical equipment. Serving 13 counties in central Indiana, Community Home Health Services has been one of the top home health agencies in central Indiana for more than 50 years. From skilled nursing to occupational, physical and speech therapies; from intravenous therapies of antibiotics, hydration, chemotherapy and nutrition to hospice care; from oxygen, sleep disorder equipment, wheelchairs and beds to Lifeline personal response services; one call will give you access to your home health needs. For more information about Community Home Health Services, call 800-404-4852, 24 hours a day, seven days a week.
CHHS also offers Community at Home which provides online purchasing of medical equipment and supplies on a self pay basis at hmhealthstore.com.
Also being provided this year is Senior Care Management where assessments and evaluations can be made to assist patients and caregivers with unbiased opinions, and support services and resources. Call 317-621-4663 or 877-621-4660 for services.
Sandra Eskenazi Center for Brain Care Innovation
In 2008, the research lab and the clinic became one entity as older adults with cognitive disorders and their caregivers began receiving care in the new Healthy Aging Brain Center at the IU Center for Senior Health at Wishard Health Services. The center currently bases its services on a care model that IU-CAR and colleagues developed and extensively tested over the past 7 years. The center puts cutting edge research into the hands of patients, caregivers and primary care physicians. Dr. Malaz Boustani is the Research Director of the Healthy Aging Brain Center. For more information or to schedule an appointment, please call Eskenazi Health Senior Care at 317.880.6560.
The Memory Clinic of Indianapolis
Dr. Polly Shepard, fellowship trained neuropsychologist, strives to provide comprehensive assessment, treatment, and consultation for patients with both cognitive and emotional difficulties. The Memory Clinic of Indianapolis provides specialized evaluation of cognitive and emotional disorders through neuropsychological assessment. Neuropsychology is a specialty profession focused on how the brain affects your thoughts, feelings, and behavior. The Clinic is a division of Professional Psychological Services, a practice that provides treatment and evaluative services for a broad range of psychiatric and neurologic disorders, including memory dysfunction.
Rehabilitation Hospital of Indiana (RHI)
RHI is the largest free-standing rehabilitation hospital in the Midwest. Founded in 1992, RHI has served patients in both acute inpatient and outpatient rehabilitation. These patients include (not limited to) the following areas: major multiple trauma, spinal cord injury, stroke, brain injury (traumatic and acquired), movement disorders, balance disorders, sleep disorders. RHI serves individuals ranging from adult to geriatric age. RHI is dedicated to working collaboratively with other providers to provide the best patient care across the continuum.
Seasons Behavioral Health Unit for Older Adults
Older adults with behavioral changes may suffer from an array of physical and emotional problems. For example, depression and anxiety may be aggravated by infection or prescription medications. With these complexities in mind, Community Health Network’s Geriatric Psychiatry Services specializes in comprehensive inpatient care provided in a secure setting. We provide full diagnostic and treatment services to the patient and offer support and assistance to the family.
St. Vincent Center for Healthy Aging
The Center for Healthy Aging is a premier patient and family focused center of interdisciplinary geriatric and gerontological clinical practice, applied research and education that disseminates research findings and best practice information from local to international levels. The Center for Healthy Aging serves as an authentic voice in public discourse on aging, while supporting successful aging through the provision of exceptional clinical services, advocacy, research and education.
Touchpoint Healthy Aging Transition Services (HATS)
Touchpoint HATS is a new geriatric consult clinic for Community Health Network. HATS offers a full continuum of services designed to meet the diverse needs of older adults. The program offers a wide range of services including comprehensive geriatric assessments, cognitive assessments, assessment of caregiver burden, falls and mobility evaluation, and medication review. The Interdisciplinary geriatric assessments are conducted by Azita Chehresa, M.D., Ph.D., our geriatrician and medical director of Touchpoint, an adult nurse practitioner and a licensed clinical social worker. Our staff is trained to evaluate and address the patient and family/caregiver needs with the primary care physician to ensure the necessary services and resources are delivered. Our goal is to exceed our patients’ expectations by providing exceptional service and helping them maintain their optimum level of health.
Witham Health Services Transitions Unit for Geriatric Psychiatric Care
Witham is a county owned full service facility in Lebanon, IN which is midway between Indianapolis and Lafayette, IN. Our Transitions Geri Psych unit can facilitate 10 patients. Patient are generally 60 years old and above with a cognitive impairment diagnosis. Medicare or commercial insurance accepted. Dr. H.David Spangler is our medical director. We also have an outpatient program called “Senior Assessment” which provides services for people still residing in the community and not yet in an ECF. A doctor’s order is required. Brochures are available upon request.
National Alzheimer’s Project Act
The National Alzheimer’s Project Act (Public law 111-375) is a piece of legislation passed by Congress in 2010 and signed into law by President Barack Obama in 2011. It required the creation of a national plan to address the growing alzheimer’s problem in the United States. To learn more about NAPA and other public policies relating to Alzheimer’s disease, visit the Alzheimer’s Association website.
Indiana University Center for Aging Research
Researchers at IUCAR publish many studies and papers on the topic of aging. If you’d like to sign up to receive newsletters with information on IUCAR research, contact Phil Lofton (firstname.lastname@example.org).